How RDSPs work -
The Registered Disability Savings Plan (RDSP) was established to help parents and others save for the long-term financial security of a disabled person (one who qualifies for the Disability Tax Credit ).
Disability themed Comic Con addresses bias in pop culture -
It’s not Superman. It’s not Spiderman. It’s the Access Avengers, a group of disability themed superheroes, and they’re here to crash through stereotypes at this…
Even Small Medical Advances Can Mean Big Jumps in Bills
Traditionally, insurers lost money by covering people with chronic illnesses, because they often ended up hospitalized with myriad complications as their diseases progressed. Today, the routine care costs of many chronic illnesses eclipse that of acute care because new treatments that keep patients well have become a multibillion-dollar business opportunity for device and drug makers and medical providers.
The high price of new treatments for diabetes, rheumatoid arthritis, colitis and other chronic diseases contribute mightily to the United States’ $2.7 trillion annual health care bill.
More than 1.5 million Americans have Type 1 diabetes and cannot survive without frequent insulin doses, so they are utterly dependent on a small number of producers of supplies and drugs, which have great leeway to set prices. (Patients with the far more common Type 2 diabetes — linked to obesity — still produce insulin and can improve with lifestyle changes and weight loss, or on oral medicines.)
That captive audience of Type 1 diabetics has spawned lines of high-priced gadgets and disposable accouterments, borrowing business models from technology companies like Apple: Each pump and monitor requires the separate purchase of an array of items that are often brand and model specific.
A steady stream of new models and updates often offer dubious improvement: colored pumps; talking, bilingual meters; sensors reporting minute-by-minute sugar readouts. Ms. Hayley’s new pump will cost $7,350 (she will pay $2,500 under the terms of her insurance). But she will also need to pay her part for supplies, including $100 monitor probes that must be replaced every week, disposable tubing that she must change every three days and 10 or so test strips every day.
That does not even include insulin, which has been produced with genetic engineering and protected by patents, so that a medicine that cost a few dollars when Ms. Hayley was a child now often sells for more than $200 a vial, meaning some patients must pay more than $4,000 a year. Other refinements have benefited a minority of patients but raised prices for all. There are no generics in the United States.
i drew this a while ago…i’m okay right now but it’s good to remember
“”Can you move them over there?’ It was such an innocent question. The woman volunteering as an usher looked at the only one in my group of friends who doesn’t use a wheelchair or a walker, hoping he would herd us, “them,” to the back of the lobby to get out of the way for other people using mobility aids. My friend doesn’t appear to have a physical disability when he’s just standing still, so the usher directed her request at him as though he was our chaperone. And while this simple, blatant ableism so often renders me speechless until I come up with the perfect reply in the middle of the night, I just wasn’t willing to sit there and take it that day.” [read more]
Did you know that invisible disabilities make up 96% of all disabilities? I certainly didn’t until I met someone my own age with rheumatoid arthritis. I’m glad to have met some absolutely amazing people who live with challenges that the eye cannot see because symptoms of fibromyalgia syndrome eventually became too big to ignore in my own body. I’m glad to know that I have so many others with invisible disabilities who understand me. I’m also glad to know that there are people who don’t understand, even though it can lead to hurt feelings and awkward moments, because I would never wish the pain I experience on anyone else. Regardless of whether or not you can empathize with my pain and my struggle, I deserve respect. I have the right to speak my story to people I trust and I also have the right to remain silent with people I don’t know. My disability is invisible, not imaginary.
"The bottom line is that everyone with a disability is different, with varying challenges and needs, as well as abilities and attributes. Thus, we all should learn to listen with our ears, instead of judging with our eyes.
The Invisible Disabilities Association”
[Image description: Helen Keller sits by a radio, with her hand over it, in order to feel the vibrations of the music playing]
Helen Keller wrote the following letter to the New York Symphony Orchestra in 1924, describing listening to the “Ninth Symphony” composed by Beethoven - who was also deaf - over the radio:
I have the joy of being able to tell you that, though deaf and blind, I spent a glorious hour last night listening over the radio to Beethoven’s “Ninth Symphony.” I do not mean to say that I “heard” the music in the sense that other people heard it; and I do not know whether I can make you understand how it was possible for me to derive pleasure from the symphony. It was a great surprise to myself. I had been reading in my magazine for the blind of the happiness that the radio was bringing to the sightless everywhere. I was delighted to know that the blind had gained a new source of enjoyment; but I did not dream that I could have any part in their joy. Last night, when the family was listening to your wonderful rendering of the immortal symphony someone suggested that I put my hand on the receiver and see if I could get any of the vibrations. He unscrewed the cap, and I lightly touched the sensitive diaphragm. What was my amazement to discover that I could feel, not only the vibration, but also the impassioned rhythm, the throb and the urge of the music! The intertwined and intermingling vibrations from different instruments enchanted me. I could actually distinguish the cornets, the roil of the drums, deep-toned violas and violins singing in exquisite unison. How the lovely speech of the violins flowed and plowed over the deepest tones of the other instruments! When the human voices leaped up thrilling from the surge of harmony, I recognized them instantly as voices more ecstatic, upcurving swift and flame-like, until my heart almost stood still. The women’s voices seemed an embodiment of all the angelic voices rushing in a harmonious flood of beautiful and inspiring sound. The great chorus throbbed against my fingers with poignant pause and flow. Then all the instruments and voices together burst forth – an ocean of heavenly vibration – and died away like winds when the atom is spent, ending in a delicate shower of sweet notes.
Of course this was not “hearing,” but I do know that the tones and harmonies conveyed to me moods of great beauty and majesty. I also sense, or thought I did, the tender sounds of nature that sing into my hand-swaying reeds and winds and the murmur of streams. I have never been so enraptured before by a multitude of tone-vibrations.
As I listened, with darkness and melody, shadow and sound filling all the room, I could not help remembering that the great composer who poured forth such a flood of sweetness into the world was deaf like myself. I marveled at the power of his quenchless spirit by which out of his pain he wrought such joy for others – and there I sat, feeling with my hand the magnificent symphony which broke like a sea upon the silent shores of his soul and mine.”
[Agent Dana Scully raises her eyebrows and shakes her head back and forth in mocking disbelief.]
Seoul, South Korea — Members of National Solidarity for Ending Discrimination Against the Disabled are sprayed with tear gas by police before attempting to board a bus to Daejeon, at Express Bus Terminal in Seoul’s Gangnam district, Apr. 20, 2014. On South Korea’s official Day of the Disabled, the activists asked that express buses be made wheelchair accessible. They tried to board a bus, but were blocked by police.
25 Questions that Provoke Thought -
Practical Tips for Productive Living
4. Would you rather be rich and paralyzed from the waist down or poor and able bodied?
^…questions that require you to consider extremes…because having a disability is an extreme. Who wrote this?!
Safeguarding the rights of others is the most noble and beautiful end of a human being. — Khalil Gibran
The brain injury that made me a math genius -
Twelve years ago, Jason Padgett had never made it past pre-algebra. And then a violent mugging changed everything
Sewing Tutorial: How to Make a Weighted Blanket (Sensory Friendly) - Mama Smiles -
This tutorial will show you how to make your own weighted blanket - sensory friendly for SPD and other sensory sensitivities.